BSOrphan
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Unit 2, Morston House Princes Court Beam Heath Way Nantwich Cheshire CW5 6GD
Tel: +44 (0) 1270 260211 Fax: +44 (0) 1270 621725 info@bsorphan.com
 

BS Orphan was established to help provide access to care for patients with certain rare diseases who live in either UK, Ireland or the Netherlands.

Medications to treat patients with rare diseases may be unavailable for various reasons including:

In such situations medications may be available under special license. In this setting the prescribing doctor assumes personal responsibility for their use. EU law prohibits their promotion to patients or healthcare professionals.

BS Orphan is currently providing medical information and clinical support for programmes to treat selected inherited metabolic disorders such as Wilson's Disease and Congenital Sucrase Isomaltase Deficiency (CSID)

A library of scientific information is available to physicians, pharmacists, specialist nurses and other healthcare workers upon request. This includes information relating to formulary support.

© bs orphan 2016

+44 (0) 1270 260211

info@bsorphan.com

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